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#LongCovid

175 posts119 participants15 posts today

This #LongCovidAwarenessDay I’m reflecting on how many people have been let down by governments, public health & medical establishments

How Covid has been downplayed, airborne spread ignored & vaxx and relax strategies pushed for the sake of capitalism

How many have Long Covid because of this?

Those of us who were disabled before the pandemic could see this wave of chronic illness coming - and many of us have been screaming from the top of our lungs the last 5 years.

Begging people not to take their health for granted & to wear a mask and protect themselves.

Warning them that there are no do-overs once you become chronically ill. Unfortunately very few people are listening - and many won’t understand the true devastation of #LongCovid until it directly impacts them. At which point it’ll be too late.

Despite seeing these waves of disability as an inevitable consequence of “let er rip” Covid strategy - one thing I did not see coming was how many people would willingly embrace not only ableism - but full on eugenics.

People in my own life who were previously kind & supportive have become cruel and angry. The masks have been ripped off. They don’t hesitate to tell me that they blame me for the restrictions placed on them in the early days of Covid.

That they will never again allow their freedoms to be infringed on in the name of protecting the vulnerable. One even went as far as to say “you’ve been sick for years - just die already.”

People who say these things don’t understand what disabled ppl understand all too well - your health is not a permanent state.

Everyone will become disabled eventually - some earlier than others. Many who think they’re invulnerable are already vulnerable and don’t even know it

Yet rather than adapting behaviour and pushing for a new normal that makes the world safe for everyone - most temporarily abled people have instead doubled down on hateful eugenics talking points and want us to stay home forever (or worse - die). It needs to stop.

Covid is airborne and we all share the air. “You do you” individualism is quite literally killing people. We need to start caring about the air we share as this will lead to a healthier society for everyone.

Until then we need to mask up. It’s easy, incredibly effective & it might save someone’s life. At the very least you will know you didn’t contribute to another person’s suffering - and you will be drastically reducing your own odds of getting Long Covid. It’s worth it.

disabledginger.com/p/i-dont-kn

The Disabled Ginger · I Don't Know Anyone With Long CovidBy Broadwaybabyto
Continued thread

I have a much harder time thinking these days. There are times I'm so tired that when I go to talk, I speak gibberish. I forget words all the time. Trying to find the word is like dragging my brain through a glue trap. I have a hard time reading any one thing for very long. I'm glad I can still write coherently, but I don't seem able to write much after supper. I'm also finding that I have an extremely hard time concentrating on much of anything after supper. I'm afraid I'll have to stop signing up for online evening classes because I can barely stay alert during them. It feels an awful lot like when I had mono back in 1989. #LongCovidAwarenessDay #LongCovid #Covid #BrainFog

Continued thread

As far as I know, I've only had COVID once. It was a "mild" case. It didn't feel any worse than a cold and a bit of a sore throat for me. And even though I was fully vaccinated, took Paxlovid right away, and rested very very hard for three months (going to bed whenever I felt even the slightest bit tired), I still ended up with long COVID. I was strong and healthy before. I trained five days a week at the gym and yoga studio and hiked on weekends.

I'm scared shitless about getting COVID again. I'm one of the very few people I know who still masks regularly. #LongCovidAwarenessDay #LongCovid #Covid #MaskUp

Today is international #LongCovid Awareness Day

Check this canadian interview with a Mount Sinai (NY) chronic disease specialist. Up to one in five people with COVID-19 develop LONG COVID, meaning three months after having the disease they still do not recover their full abilities.

The specialist affirms that each reinfection, even moderate, of COVID-19 subtracts between 2-6% of IQ.

LONG COVID is a disease that causes systemic damage, especially to the immune system, causing T-cell exhaustion and triggering latent diseases or exposing the body to new pathogens from which it would have been able to defend itself before. Worth a listen:

cbc.ca/player/play/audio/9.668

#CovidLong #COVID19 #CovidIsNotOver #COVIDisAirborne
#CovidIsntOver
#ImmuneSystem #ImmuneDysfunction
#autoimmune #TCell
#chronicillness
#ChronicIllnesses

I was an athlete for years. I did fitness competitions, trail running, mountain running, obstacle course races, interprovincial bicycling, hiking, and martial arts. I was a professional dancer, an aerialist, a model, and a LARPer. These days, I spend the vast majority of my time sitting down. I go to the gym a couple of times a week and try to go for walks every day, but if I exert too much or think too hard for too long, I'm exhausted.

This is not the normal feeling of being tired after a grueling workout. It's not a mind over matter thing. It's the kind of fatigue you feel when you're sick or dealing with a nasty injury. #LongCovidAwarenessDay #LongCovid #PostExertionalMalaise #ChronicIllness

It blindsides you.

Everything is good and productive and then I share because I find humor in it

Them: comment about confusion/memory/age

Me: my #LongCovid is like getting older faster, when someone says something sometimes I don't even register that anything was said for a whole minute, lol

Them: well you're breathing your own air you don't get any fresh air

The one two punch: when you text sometimes I can't even decipher it

I'm suddenly so incredibly sad. The rest of the day is a wash.

It’s International Long Covid Awareness Day, and my latest article looks at the reasons why people believe they don’t know anyone with Long Covid.

We desperately need increased visibility into this debilitating chronic illness so that we can raise awareness and fund treatments, mitigations and cures.

Anyone can get Long Covid. It’s not limited to ‘only the vulnerable’ or those who had a severe initial infection.

This disease does not discriminate. Even people with asymptomatic initial infections have found themselves disabled by Long Covid.

It’s time we start processing the trauma of the pandemic and stop living in denial.

We are in the middle of a mass disabling event, and the longer it takes us to admit that, the more people will be harmed.

Let’s spread the word that the only way to avoid Long Covid is to avoid getting Covid in the first place.

Wear a mask. Stay home when sick. Clean and ventilate the air.

When we all agree to care about the air we share, we can begin to bring about real change.

disabledginger.com/p/i-dont-kn

The Disabled Ginger · I Don't Know Anyone With Long CovidBy Broadwaybabyto

I should probably post something meaningful and profound for #LongCovidAwarenessDay but I'm too tired after spending every spoon on my son's birthday.

Instead, inspired by someone else inviting people to #SitTogether, I'm just going to suggest we adopt Sit Down by James as our anthem.

"It's hard to carry on
When you feel all alone
Now I've swung back down again
It's worse than it was before"

Sit down next to me.
Sit down in sympathy.

Continued thread

More quotes:

"Check out other organizations that fight for Long COVID day in and day out including:

Black Long COVID Experience, COVID-19 Longhaulers Advocacy Project, Long COVID Families and Patient-led Research Collaborative, among others!

Share information, check out these groups, donate today!

Long COVID research care and treatments matter for everyone."

@longcovid

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