People don’t “get” chronic illness until it happens to them or someone they love.

The same goes for preventative health measures. Folks take unnecessary risks believing they’ll be the exception.

When the worst happens, do they adapt?

Some do. But the parents of a Texas child who died of measles don’t fall into that category.

They lost their child and are still recommending parents don’t vaccinate their children. The reason? The other 4 kids had “mild” cases

This is ghastly.

https://www.independent.co.uk/news/world/americas/measles-outbreak-texas-child-dead-parents-anti-vax-b2718899.html

Not the most helpful message I've ever got from my "care team": "Thanks for the additional information. Understand your anxiety over the meds and symptoms but the best approach to that is to treat your underlying medical problems. Hang in there. "

Artist: Jen Jen Rose [ https://www.facebook.com/jen2rose/ ]

#chronicillnessmemes #chronicillnesshumor #chronicillness #autoimmune #chronicallyill #spoonie #spoonielife #spooniememes #feelshit #feellikeshit #feelshitty

I put it up on Etsy as a sticker, pin, shirt, or mug [ https://www.etsy.com/shop/ChronicIllnessTees?ref=dashboard-header&search_query=choosing ]

#medical #ChronicIllness #health

I appreciate my doctor's efforts to help me with my ongoing complex health issues ... but if he tells me one more time to “just hang in there" when I tell him I'm struggling, I swear I'm just going to start breaking things.

It's not normal to be housebound 80% of the time.
It's not normal to need to rest in bed for days after spending just 2 hours 'out in the world doing things.’
It's not normal to have doctors tell you to 'just hang in there' when you say your combined disability is severely affecting the quality of your life and ability to work, study, and participate in society.

Normalize treating complex, disabled patients.
Normalize prioritizing our well-being.
Normalize hearing our self-advocacy.
Normalize advocating for us.

Guidelines about accommodating people with disabilities are being scrubbed from the Justice departments website in an effort to … reduce the cost of groceries.

Once again disabled people are targeted because the government assumes no one will speak up for us.

Speak up. We need you.

Spoiler alert… this will not actually lower the cost of groceries. It will lower the quality of life for people like me though!

https://www.theguardian.com/us-news/2025/mar/19/justice-department-disability-business-guidelines

"Maybe I'm fine. Maybe I'm faking it. I feel fine now," I said, lying on the sofa, propped up on pillows and with an ice pack on the more fucked-up shoulder.

Two minutes later, when I go into the kitchen for a drink, I have to grab the counter with both hands to keep from falling down.

I wish everyone would get the flu vaccine regardless of health status and age. You will come into contact with people who will benefit from you not getting sick. People you could make sick unintentionally. #flu #ChronicIllness